Have you ever wondered how your doctor or nurse knows the best treatment to prescribe when you're ill? The answer is simple - it's all down to research studies which are designed to find ways to treat or prevent disease.
The goal of research is to improve everyone's knowledge about health and disease. Taking part in research may lead to new solutions to problems and thus improvments in health. Moreover, taking part in research may enable you to access new and innovative treatments before they're available to others.
"The Primary Care Research Network East Midlands and South Yorkshire (PCRN EMSY) is part of the NHS. Please visit our website at: www.pcrn-emsy.org.uk. PCRN EMSY aims to promote research and we have worked closely with doctors and pharmacies since 2007. You may have already been invited to take part in a research study or may already be participating in one."
"PCRN EMSY has a portfolio of research studies and your surgery actively supports our work. This means that your surgery is sent information about new studies and invited to take part. If the doctors are happy that the research will benefit patients, work will then start to identify eligible patients. This means you might receive a letter from the surgery, or your doctor or nurse may discuss a study with you during your appointment. Either way, it is up to you to decide whether you want to take part."
If you would like want more information, please contact Janice Strand, PCRN EMSY Locality Manager, on 0116 295 1589.
As a university we use personally-identifiable information to conduct research to improve health, care and services. As a publicly-funded organisation, we have to ensure that it is in the public interest when we use personally-identifiable information from people who have agreed to take part in research. This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study. Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole. We do this by following the UK Policy Framework for Health and Social Care Research.
If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection Officer who will investigate the matter. If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful you can complain to the Information Commissioner’s Office (ICO).
Our Data Protection Officer may be contacted here:
Data Protection Notice version 1.0 10 May 2018
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